Wednesday, December 5, 2007

Tap Routine

Kylie had her observation day at tap/ballet class and I played around with my movie feature on my camera. I guess I didn't realize how easy it was to use, or else I would have been making tons of movies all along! And if I can upload them, watch out! I have a whole new hobby! Here's a tap routine that she did.

Monday, December 3, 2007

Over the Rainbow



We celebrated Kylie's fifth birthday on Sunday with a Wizard of Oz theme. Our guests were greeted with a yellow brick road at our entrance leading them into the basement (Over the Rainbow). (Notice the squished Witch?)


Their first stop in Munchkinland was to make their very own ruby slippers, then Melanie (AKA Dorothy) led them on a scavenger hunt to find the witch. Along the way they found Toto and two of the witch's brooms. Then they had to reassemble their own scarecrows which gave them their "diplomas." Then they had to chase rotten apples out of the forest (relay race) which awarded them their badges of courage (and helped them find and melt the witch). A fun game of don't get stuck in the witch's castle when the music stops was a blast. Finally they had to help the tin man get his heart and were awarded with their own heart necklaces. All the girls clicked their heels together and said "There's no place like home," and were transported back to Kansas (upstairs) for cake and ice cream.



Making our ruby slippers



Our scarecrows were really cute! Thanks Beach Grammy!





As soon as everyone left, Kylie couldn't wait to try on one of her presents from her school friend Jessica. Perfect gift!

Updates

Kylie was very brave and held really still for her MRI. The results came back 4 days later and showed no Chiari! And a completely normal brain. Thank goodness!

An update on my parents. . .mom is still feeling pretty good. She has occasional headaches and has to be really careful not to overdo it. My dad is still feeling pretty tired. He had his first appointment with his oncologist last week and has more testing to undergo. They still can't find the primary site of the cancer and can't proceed until they do. . . the cancer on the small intestine was on the outside of the intestine, so they know it is coming from somewhere else. He also has to have a surgery to reduce the size of his prostate which is going to happen very soon.

Our First Thanksgiving. . .


Our first Thanksgiving in our new home was simple and relaxing. We woke up for waffles (on my new Belgian Waffle maker - early Christmas from Tom), watched the parade and then had a dinner of turkey breast, mashed potatoes, corn and homemade bread. It was a beautiful day outside, so we loaded up the dog and went to the conservation land for a walk in the woods. Jayhawk took a swim and the girls played on the beach and playground. Then it was home for pumpkin pie and a movie.

Wednesday, November 21, 2007

I've Been Tagged!

I've been tagged to relay 8 things about me that no one knows. Thanks a lot Tom! Since I had to help Tom with his list, you should check it out on his blog in a couple of days (it takes him longer to type). Ok, so here's my list:

Eight Things Not Many People Know About Me
1. I was editor of my high school yearbook.
2. I got a 4.3 GPA in HS (merit classes) and 3.8 in five years of college and that was with a lot of extra curricular activities (we'll keep those a secret awhile longer).
3. I originally majored in Journalism in college but switched after my freshman year to OT because I didn't like one of the journalism professors.
4. I cry very easily during happy occasions - at weddings, movies and even in church when the Cherubs sing. Just something about happiness and love that makes me weepy
5. I know how to Two Step, do the Cowboy Cha Cha, the Tush Push and the County Line AND I own a pair of Ropers! (for those of you New Englanders who don't know what those are, they are really cool lace up cowboy boots). By the way I hated country music until I started dating Tom (boy from Florida whose favorite band was Nine Inch Nails) and we were dragged weekly to the Cadillac Ranch by our friends (ok, $1 anything was hard to pass up). Soon after we started dating, we realized how much we liked to dance together. I bought him his first pair of cowboy boots and he bought mine.
6. I was a Lionette (dance team) and we danced in the Cotton Bowl parade and halftime show in Dallas Texas on New Years Day 1991.
7. I lived next door to a pig farm until I was 14 and even fell in a manure pile as a kid when I was exploring my neighbors' property. Whew, I stunk.
8. I love to write. Ok, that's not such a secret anymore. But did you know I wrote my first complete novel at the age of 10? It was titled Triplet Trouble. Since then I have written five other complete novels . . .Golden Rain, Cape Bounty, Crossroads, Boy Crazy and Butterfly Girl.

Ok, that's it. Now I need to tag someone. Hmmmm. . . .Can I tag more than one person? None of my friends have a blog, so I have to choose friends who will do it through email. Ok, I tag -

Kim
Donna
Amy P
Amy R
Wendy

Don't disappoint!

Saturday, November 17, 2007

MRI Results

As most of you know, Melanie had an MRI last week to rule out Chiari. We got the results yesterday and it came back positive for Chiari Malformation. What this means. . .part of Melanie's cerebellum (the small part of the brain in the back of the head responsible for balance and coordination) is protruding below the skull. This not only can cause problems with cerebellar function, but also a vast array of other possible symptoms because of the restricted cerebral spinal fluid flow in and out of the brain (the opening is blocked by the cerebellum). If you had asked me three months ago if I was expecting this diagnosis I would have said yes - which was right after my mom was diagnosed and I recognized some of the similarities. But in this journey, the doctors had convinced me that we wouldn't find anything. I was even met with resistance to getting her checked out. I'm so glad I was pushy and insisted on testing her. But even I had decided she wouldn't have it.

So, the next step is to visit with a neurosurgeon. There is no reason to do surgery unless her issues becoming severe and debilitating. Over time the space can deteriorate or different conditions can arise. At that time surgery might be necessary. It is my understanding that she would just need to be followed by a neurosurgeon with routine checkups and MRIs.

Also, Kylie is now going to have an MRI. That is in the process of being scheduled.

Melanie's neurologist found it unusual that my MRI that was done a couple of months ago came back negative. I guess it is rare for it to skip a generation and go from a grandmother to her grandchildren. She would like to look at my films when we come back to her in February for Melanie's 3 month follow up. I checked into it yesterday and the same radiologist that read Melanie's films also read mine. You wouldn't think he could have missed it. I don't have the balance issues that Melanie does, but I do have issues swallowing where food gets stuck in my esophagus and I also have a constant pain/pressure in my right ear that radiates from my neck. Both are possible symptoms of Chiari according to some research that I have done.

In this process I have emailed Julie Clark who was the featured mother on Extreme Makeover Home Edition. She and her three daughters all have Chiari and she has started a support group in Montana. I heard back from her yesterday and she gave me a very useful web site. Check it out if you 'd like to understand more:

The Chiari Institute

There is 16 hours of educational video on this web site that she encouraged me to watch and take notes. I haven't done it yet, but I'm sure I will!

Finally, here is a real life story about a family with Chiari that I found useful. If you don't read anything else, at least read this story. I see a little bit of us in all of them. (Melanie has suffered from extreme leg cramps in the past. . .Kylie can't stand to walk more than 10 feet without a stroller).

Life - StatesmanJournal.com

Tuesday, November 6, 2007

Storm update


We had quite the adventure Saturday and Sunday. The Nor-Easter dropped tons of rain and lots of wind on us. We had branches down all over the place, but no trees in our yard. Our basement filled up with water from one of the window wells, so we spent a majority of the storm trying to deal with that. Tom spent an hour out in the wind and rain digging a ditch from the window well out to the yard to drain the water away which really seemed to help. Luckily he took a break at the opportune moment because when he went back outside there was a huge branch in his place that had dented the ground when it hit. We lost power for about 18 hours and had a fun time camping out in our bedroom in front of the fire place. Here's a pic of the girls sound asleep cuddled up with the dog while the storm raged outside. The mail from Saturday was whipped from inside the mailbox and flew around the neighborhood. We were able to collect some of it Sunday morning and found that we actually got some really important mail that day - some of which was never recovered. Ahhh well, that's our luck it seems!

Saturday, November 3, 2007

Hurricane A-Coming!

Well, more like a tropical storm or Nor-Easter as they call it here. But at one time Noel was a hurricane. We could get 4+ inches of rain with winds 35-50 mph with gusts up to 75 mph. This is supposed to go on all day today, so check in tomorrow and we'll let you know how we held up. Kylie and I battened down the hatches yesterday, bringing in all the bird feeders, chair cushions, flags and anything else that might blow around. We stocked up on batteries, firewood, groceries and water. We don't need to go anywhere today, so we'll stay in and play games, read books, watch movies (if we keep power). It's just like we're sick again - stuck in the house for another day!

Dad came home from the hospital yesterday! He has to follow up with about a gazillion doctors next week, but at least he's home and can start really recuperating!

Bop To the Top!




I almost forgot to take a picture of the girls in their costumes! I thought of it just as we were leaving for Trick or Treating. They are wearing their costumes and dress up clothes all the time, so seeing them for Halloween is just like any other day.

Kylie missed her Halloween party at school. She was still not feeling well and battling the rash. I gave her Benadryl Wednesday morning, she slept ALL afternoon and by Trick or Treating time was feeling well enough to go. So far as of Saturday, the rash has not come back again, but then again neither has her appetite.

Melanie is Gabriella and Kylie is Sharpay from High School Musical. If you've seen the movie, just think of the characters' personalities and they fit perfectly with who is in which costume.



We had fun trick or treating in our new neighborhood and handing out candy to all the neighbors. Tom and took turns taking the girls out, then we left our candy bowl on the front step and jumped in the car and headed to our old neighborhood. Our old neighbors were happy to see us (we were only their second trick or treaters) and we got to stop in on our old house. The new owners invited us in for a minute and we got to see all the changes they made. The girls were a little weirded out to see their old house with hardwood floors!

Wednesday, October 31, 2007

One more bit of good news

Something I forgot to mention in my list of good things. . .When the Red Sox won the World Series, we got a free sofa! We had bought our furniture at Jordan's during their Red Sox World Series promotion last Spring. Now we wish we had gone for the more expensive set!

Tuesday, October 30, 2007

God doesn't give us more than we can handle!

I want to thank all of you who have sent words of support and encouragement and apologize for not updating everyone sooner on how my parents are doing. I think I've been letting it all sink in.

Mom was discharged from the hospital last week and is physically doing very well. I think she gets tired, but is becoming stronger and steadier on her feet everyday. She will see the doctor again on Thursday and will hopefully be cleared to take a shower and wash her orange hair (from the iodine).

Dad's surgery was slightly delayed due to a mass that was found on the sonogram. The gall bladder surgery ended up being a full open surgery instead of the laproscopy that was originally planned. They removed the gall bladder and 18 inches of the small intestine which was cancerous. He is slowly recuperating from the surgery and was moved from the ICU to a regular room today. As of right now the path report on the cancer has not come back (a week later) to indicate what type of cancer. He was seen by the Physical Therapist and was up walking for the first time today. He's in room 115 at St. John's Hospital in Leavenworth.

Our neuro appointment last week went well. Melanie demonstrates more signs of Chiari than Kylie does (balance and incoordination) so she will be given an MRI next week. . but the neurologist doesn't seem to think it will show anything. Kylie's issues are more related to her overall low tone and some bloodwork was done for her, but no MRI. Tom took the whole day off work and we went to lunch and shopping after the appointment. It was a fun and much needed family day.

Although, Kylie was still a little under the weather on Thursday from her cough. She slept from 5:00 that evening until 7:30 the next morning. That night, Melanie woke up at 10:30 after vomiting in her bed and proceeded to be sick all that night. She missed school Friday but was better for the weekend until she started coughing on Saturday. She seemed fine by Monday morning so we sent her to school and I went to work. Soon the school nurse called and said she had a coughing episode as soon as she got off the bus and vomited in her classroom. Luckily Tom was able to get her while I finished my testing at work, then I came home to find her feeling pretty good with just occasional fits of coughing.

Kylie seemed back to normal yesterday except for a weird rash that had developed over her back and chest. She kept complaining that her back hurt and was up a couple of times during the night. The rash would go away for awhile and then return mysteriously. This morning, rash was gone and she was doing well and had a good appetite for breakfast. Then 5 minutes before she was leaving for school she complained her tights were hurting her stomach. I hoped for just tights that were getting too small and sent her off to school. Sure enough 1/2 hour later, Tom is calling me to tell me Kylie threw up at school. After some coordination he was able to pick her up and stay with her until I got home. He did a great job cleaning up the inside of his jeep, her sheets, mattress, clothes and her!

So, my friend Kim was able to visit my dad the other day and reported he looks good and is handling things well. The title of my blog today "God doesn't give us more than we can handle" comes from Kim. So, that is my mantra this week! Let's just hope Tom and I don't end up getting sick with the stomach bug (we've both been coughing already). Oh, and somewhere in all this the Red Sox won the World Series, right?

I will also continue to focus on the other positives. . .
Mom is doing well.
They found the cancer because of the gall bladder.
The girls aren't sick with anything serious.
Maybe we'll get all our sickness over with now and be free and clear all winter.

Wednesday, October 24, 2007

Chiari, Gall Bladders, Wildfires, Fevers, Mold and the RED SOX

It has been a crazy week for our family. . .



Mom underwent surgery on Monday for Chiari Malformation. She was diagnosed a few months ago due to dizziness, headaches, neckaches and various other symptoms. This is somthing she has had her entire life, but because of recent changes in her spinal canal, she has had the recent onset of severe symptoms (other lifelong symptoms include incoordination and balance issues). The cerebellum part of the brain has herniated below the skull and limiting the flow of cerebral spinal fluid to and from the spine. Coincidentally, Extreme Makeover Home Edition featured a family on Sunday night who all suffer from this condition. The episode was very informative and educational, so check it out if you want more information. You may need to download the media player in order to watch it, but the entire episode is featured in the link below (copy and paste).

http://ll.static.abc.go.com/streaming/move/00070006/static.html?d=20070521&aff=abc&wrapped=1

Something the episode really highlighted was how hereditary this condition can be. With Melanie and Kylie having some similar syptoms, I thought it would be important to have them evaluated as well. We made an appointment with a neurologist in Boston several months ago and that appointment is tomorrow.

Mom's surgery seems to have gone fine, but Dad has been struggling with stomach pain and issues for a couple of weeks. He has avoided going to the doctor because he wanted to wait for Mom to get settled. But yesterday the pain was too intense, so he finally visited the doctor who ordered a sonogram. He was immediately hospitalized and will undergo gall bladder surgery this morning.

Eric was in San Diego for work through all of this and was affected by the wild fires. His meetings were canceled and they were afraid they would get stuck there, but he was able to get out and back to KC ok (he mentioned his rental car had 1/4 inch of ashes on it).

Kylie woke up last night with a fever of 103 and was miserable. We canceled a bunch of activities today, but she seems much better. She ate 3 pieces of toast this morning and two full cups of pink milk. For those of you who know her well, you know that this is more than she usually eats in a whole day. I think she's feeling better!



This all comes just after we had the Disaster Specialists at our house for four days completely cleaning our new basement of mold damage from a toilet overflow. We had to throw away a ton of stuff. All in all it was about $8000 worth of damage but luckily our home owners insurance covers it.

Soooo, with all that going on the RED SOX start playing the ROCKIES tonight. I have to say the Rockies are probably my favorite National League team because of my large family contingent in Denver who are ALL avid sports fans. So, Aunt Karen, Uncle Bob, Cindy, Kenny, Todd, Kim, Ryan, Kelsey, Lauren and Erin. . .check out the impression one Cape Cod guy has about the Rockies team and Coors field. . .it's kind of funny, but don't take it personally! I know that where the Rockies play is much more urban than where we live. I love the fake mountain in the background!

http://www.capecodonline.com/apps/pbcs.dll/article?AID=/20071023/MEDIA0302/71023008

Tom was able to go to the last two playoff games against the Clevland Indians and had a blast. He may be able to catch one World Series Game (he's got a connection). At the playoff game on Sunday night, Tom ended up visiting and hanging out with Trot Nixon's wife for several innings. His friends took pictures, but I haven't seen them yet. If I get some I'll post them to the blog.

Sunday, October 21, 2007

The Cat, the Spider and the Jack O'Lantern



Today we worked on carving our pumpkin. Wow, we couldn't pick an easy pattern could we? Well here is the result. Doesn't look too bad! Just don't look closely at the spider's legs.



Tuesday, October 16, 2007

Pumpkin Time



We finally made it to the pumpkin farm this weekend. The girls had a blast picking out their pumpkins. Usually we get one for each family member, but somehow we now have five on the front porch and two inside. Daddy is just such a pushover when it comes to Kylie's sweet puppy dog eyes.

In other news, things are super busy around here. Melanie's 2nd grade teacher broke her ankle and we are now in week three of a substitute teacher. Rumor has it that her teacher won't be back until Christmas! Anyway, things are stressful with that change in more ways than one.

I have had 3 job offers in the last week or so. I think I will accept one and a half of them. When it rains it pours!

Wednesday, October 3, 2007

Go Red Sox!




Playoff baseball starts tonight and we're ready! Even Jayhawk is getting into the spirit!

Hey. . .aren't those daisies in front of my house gorgeous? I was really excited to see my favorite flower start to bloom last week. I never know what's going to come up next.