Saturday, January 5, 2008
Tom's grandmother, Teresa Davis passed away on Sunday from a brain hemorrhage. She was 95. We attended the wake last night and saw family members we hadn't seen in years. The funeral and burial are today, but unfortunately Kylie woke up with a fever this morning so she and I are staying home while Tom and Melanie spend the day with the family. The photo of the girls is from the wake last night. The little girl is Ridley - Tom's cousin Leah's 2 year old daughter. She would be 3rd cousin to the girls? The other photo is of the photo board of Teresa - lots of great images from her life.
On Monday we have Melanie's appointment with the neurosurgeon. Since her diagnosis I have been doing a ton of research on Chiari. I have joined two Yahoo Chiari groups and I have exchanged emails with many, many other Chiari patients who are so helpful in their advice and sharing of their stories. I have a long list of questions for the neurosurgeon on Monday and even sent him an email ahead of time (to warn him mostly that we are coming and to be prepared!!!!). He emailed me right back so that was a bit comforting. Although he already has mentioned that he does not agree with some of the "experts" on Chiari (which is the source of most of my research). It will be an interesting appointment. Tom has suggested that I keep an open mind and be optimistic. After all, Boston's Children's Hospital is one of the most renowned hospitals in the world.
Wish us luck on Monday!!!